I had the jejunal ileal bypass surgery in 1974 at the age of 17 i lied about my age and did not tell my parents until the day of surgery i weighed 460 plus pounds at the time i now weigh 260 and have been this weight for 30 years plus, the problems i am having and the pain get worse and worse day by time sometimes so bad if i had any hair left it all fell out i would pull it out, all the doctors Ive been to either discount what I'm telling them its the JLB and need reversed and they want to look for everything else, Ive had a ton of colostomies, or they are weight loss surgeons and want to reverse it and give me some thing else which I DO NOT WANT, and it seems here in Georgia they go that route and cant get it approved by insurance as the insurance wont cover weight loss , well i don't want weight loss surgery i want to be put back the way i was in 1974 or as close to it as possible the damage has been done and i simply don't want it to get any worse i am almost 50 and life expectancy for this is 55 , i don't care, if i get fat again i am 50 with grandchildren and i wont live to see them grow up this way if i get fat so be it at least i wont be in pain with what i have now i need a REVERSAL plain and simple someone out there must know about this and can help. It seems for what ever reason the doctors want to look for every possible cause of these problems except the for what it is i have researched this and if 500 people who had this and still have it or had a revision had the same EXACT problems i know have it would seem to me to be pretty obvious what the problem is and not something someone who never had this surgery might have. The doctors are looking for everything but what the problem is does anyone know of a doctor? or are you a doctor who knows about this in Georgia? Please contact me as soon as possible at webmaster@thegoldshopper.com I need your help! Thanks Claude Osborne Some of the problems i am having but not limited to these.

I need a revision from a JLB i had in 1974 the symptoms are but not limited to these.

Severe burning of rectal tissues due to the release of gastric acids during bowel movements.

Severe dumping on average bowel movements of approx 20 times per 24 hour period.

Severe Arthritis over my entire body not limited to one area.

I am dizzy and have had potassium deficiencies as well as B-12 deficiencies.

I have been hospitalized quite a few times for malnutrition and for dehydration.

I am bloated and know that a large amount of bacteria has formed in the unused intestinal tract and my system is breaking down.

Well I know what your going through. I have had some really bad times and then years without really bad times. Since December I have been again having some bad times with the gas, bloting, dumping syndrome ect ect.
I really like my doctor however I have had to educate him some on what needs to be done and luckly he listens. I guess my question would be what have you tried as far as therapy (antibiotics?). I hope we can help each other in this as I don't want to undergo reconection but it may come to that.
Let me hear from you
Gary
gjpipes@msn.com

I am so sorry, I don't really know much about it, but you are in my prayers!

Hi Gary :
Your one of the first men, besides myself Ive seen to have this , i was fine up till about 5 or 6 yrs ago then it has started all going downhill, i will tell you though id do it again bad as it is now it changed my life for sure, that and plus the fact id have been dead long ago i know from the weight, my cousin Donna had it one year after i did and she passed away from it about 10 years ago, i however think her lifestyle had some to do with it a lot of partying for 25 yrs after the operation and with the liver problems we are apt to have she was bound to have had some issues there.
Would enjoy talking to you perhaps we can arrange a time to talk on the phone.
Claude

Thanks i need all i can get

Do you have MSN or Yahoo? Phone is great but a bit more costly. I was in a research program that paid for my operation. At that time I was headed for med school but I changed course into biotechnology. Would love to hear from you.
Gary

Hey all,
I guess you posed a while back, but I wanted to tell you to keep searching for information about reversal surgery. Your stories are very interesting to me. I am a first year medical student, and one of my first patients was a woman who had a JIB in 1972. She ended up with liver failure, and when I met her she had just been put on a transplant list. I was unaware that there was a whole post JIB syndrome, and will do my best to get back to you with information I can dig up. I know there is a reattachment surgery, which may help with the B12 and the ion deficiencies.
best of luck,
RR

ps- I have to say though that it is really important for a doctor to rule out every other possible cause of your symptoms before coming to rest on something like your JIB surgery. Reversal is a big step. That's what they teach us at any rate: Build a differnential, then eliminate. Some things simply take time to figure out.

ClaudeO wrote Hi, Claude

You might want to consider taking a Pro Biotic, like acidolpus or the like. You can find them in the refridgerator section at a local health food store.

For what I hear the best way to take it, is take the full daily dose all at once and do it till your bottle runs out. Then do it ever 3-4 months.

This should help to regulate some healthy flora in your intestinal tract.

Just my opinion, good luck.

I have posted before and had post JIB dumping syndrome for almost 2years 30 yrs post-op. I am a protein biochemist and I have been working with a doctor at UCLA who is well versed in all the weight loss surgeries currently in practice. We have looked at my general health issues (there are none thank god). I have tried many of the probiotics with some success but not enough to live without antibiotics. Receintly I began a course of Xifaxan 1200mg/day 14 days followed by 600mg/day 14 days. Xifaxan is not absorbed into the blood stream so it has much less sestemic side effects. I found this treatment to be unsatisfactory long term so I returned to Flagyl 600mg/day. This antibiotic has been fairly satisfactory long term but has some serious neuralogical side effects.
After just a week of returning to Flagyl I stopped taking it (not by choice) and found that I felt even better then when on it. I have disscussed this situation with my doctor and it seems clear that the combined effect of the two different antibiotics had decreased the overgrowth more effectivly then just the one. We are now looking into alternating these two antibiotics when symptoms do re-appear to try and test this theory. I just wanted to put this information out there for other JIB patients that may be suffering from similar symptoms. Gary gjpipes@msn.com