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July 20th, 2008, 06:12 PM
|  | How about a nice cup of... | | Join Date: Jun 2006 Location: Wishing I was in bed
Posts: 20,075
Rep Power: 217 | | isn't that the greatest story... | 
July 20th, 2008, 08:56 PM
|  | Coffee Addict | | Join Date: Jul 2006 Location: Cambridge, New Zealand
Posts: 6,897
Rep Power: 79 | | man im not entirely sure i like this ticker. I used the hammer because it was the most surgical looking tool they had. They can hammer the damned kidney out if they must
But everytime i see it i get a sinking feeling deep down in my tummy :O | 
July 21st, 2008, 09:47 PM
|  | Coffee Addict | | Join Date: Jul 2006 Location: Cambridge, New Zealand
Posts: 6,897
Rep Power: 79 | | | totally gutted. Doctor rang today and said that the geneticist my son saw the other day thinks both my son and I and probably half the family have Nail Patella syndrome.
Its not a major, means that we MAY have kidney problems or eye problems later in life, but probably not.
However, its probably the cause of my brothers kidney problems. And it also means i wont be a viable donor because my kidney will no doubt be abnormal.
They are testing my brother on thursday and ill hear that night if its going ahead or not. | 
July 21st, 2008, 09:48 PM
|  | Senior Member | | Join Date: Jan 2007 Location: Texas
Posts: 1,961
Rep Power: 27 | | | Oh my goodness, I am so sorry to hear that!!!!! | 
July 21st, 2008, 09:52 PM
|  | Coffee Addict | | Join Date: Jul 2006 Location: Cambridge, New Zealand
Posts: 6,897
Rep Power: 79 | | | It also means that nobody else in the family can donate a kidney to him.
Im pretty gutted right now. | 
July 22nd, 2008, 02:59 PM
|  | Coffee Addict | | Join Date: Jul 2006 Location: Cambridge, New Zealand
Posts: 6,897
Rep Power: 79 | | ok so raiding the gingernut cookies was a bad idea last night.
Having fun with allergies right now as well which isnt helping. Related to some berries of which im not sure what. Sitting in the shower for 30 mins this morning helped out heaps with the face. Back on the good diet of meat and veges and fruit again. Though husband slipped up and gave me a normal mocha instead of trim this morning. I drank it anyway because it was from a particularly expensive fancy place rather than the usual crap cafe. | 
July 22nd, 2008, 03:04 PM
|  | How about a nice cup of... | | Join Date: Jun 2006 Location: Wishing I was in bed
Posts: 20,075
Rep Power: 217 | | Quote:
Originally Posted by wishes totally gutted. Doctor rang today and said that the geneticist my son saw the other day thinks both my son and I and probably half the family have Nail Patella syndrome.
Its not a major, means that we MAY have kidney problems or eye problems later in life, but probably not.
However, its probably the cause of my brothers kidney problems. And it also means i wont be a viable donor because my kidney will no doubt be abnormal.
They are testing my brother on thursday and ill hear that night if its going ahead or not. | Oh how awful that is... i am so sorry to hear that and I hope you ge good news... | 
July 22nd, 2008, 03:05 PM
|  | How about a nice cup of... | | Join Date: Jun 2006 Location: Wishing I was in bed
Posts: 20,075
Rep Power: 217 | | Quote:
Originally Posted by wishes Though husband slipped up and gave me a normal mocha instead of trim this morning. I drank it anyway because it was from a particularly expensive fancy place rather than the usual crap cafe. | Sometimes you just need that extra treat... hope it tasted good... | 
July 22nd, 2008, 09:26 PM
|  | Coffee Addict | | Join Date: Jul 2006 Location: Cambridge, New Zealand
Posts: 6,897
Rep Power: 79 | | tasted farking awesome 
worth every darned tootin calorie as well!
God today has gone slow, in fact i cant wait to finish this job. Im counting down the hours lol. I have 2 weeks 2 days to go. | 
July 23rd, 2008, 05:17 AM
|  | Member | | Join Date: Jul 2006 Location: Deos Fortioribus Adesse
Posts: 17,024
Rep Power: 182 | | | Wow, sorry about the surgery. That sucks. So now what? He has to go on a waiting list for an 'outside' doner? | 
July 23rd, 2008, 06:22 AM
|  | Member | | Join Date: Jan 2008
Posts: 744
Rep Power: 13 | | | Oh man, that kidney thing is such a ... there is no word for it... other than shit! I mean he has been waiting for so long, and now, 20 days prior they decide to test for the genetic disorder?? Stupid ass Dr.s!
When are they going to finish testing you? If you end up having the genetic disease, other than your kidney being in bad shape and not transplantable, it would also be a risk for you, because if 5 years down the line you do develop kidney failure in 1 kidney, you want to have a second one to hold up! But I am very very sorry for your bro, and hope that testing does not confirm these suspicions.
Other than that, gingerbread cookies.... yum!
Camy | 
July 23rd, 2008, 12:45 PM
|  | Coffee Addict | | Join Date: Jul 2006 Location: Cambridge, New Zealand
Posts: 6,897
Rep Power: 79 | | Quote:
Originally Posted by Steve Wow, sorry about the surgery. That sucks. So now what? He has to go on a waiting list for an 'outside' doner? | Hes been on one for nearly 5 years now already.
There is about a 7-10 year waiting list. Not enough live donors and the only about 20 dead ones a year. Quote:
Originally Posted by Camy Oh man, that kidney thing is such a ... there is no word for it... other than shit! I mean he has been waiting for so long, and now, 20 days prior they decide to test for the genetic disorder?? Stupid ass Dr.s!
When are they going to finish testing you? | Ive been tested. Thats why i had a date for the surgery. for the new genetics thing its not something they test for because its so rare, to find out definitivly if i have it or not basicly we do DNA tests which take months.
They are inspecting my brother today. if he has sure signs of the disorder then the operation is a no-go. its all called off.
Even if he has only a smither of signs of the disorder its a no-go. | 
July 23rd, 2008, 12:58 PM
|  | Senior Member | | Join Date: Mar 2008 Location: Los Angeles,CA
Posts: 3,121
Rep Power: 56 | | I wish YOU and YOUR family the BEST  ...sorry to hear about all the issues. | 
July 23rd, 2008, 10:27 PM
|  | Coffee Addict | | Join Date: Jul 2006 Location: Cambridge, New Zealand
Posts: 6,897
Rep Power: 79 | | oh, well, fuck it.
My brother looks set to be on dialasys until he dies or finds somebody to die for him.
Apparently he MUST have NPS because he bites his nails. Whats a fucken load of poppycock, bullshit, fuck knuckle, assface, crack smoking, jizz sucking, cunt banging, complete and utter BULLSHIT.
2 years of diet and exercise, 6 months of rigourous tests and time off work, just to be denied less than 3 weeks before the fucking surgery because a doctor decides we 'probably' have some rare syndrome that we have none of the symptoms of. But "OOOOO ISNT IT EXCITING THAT IVE FINALLY FOUND SOMEBODY WITH THIS RARE GENTIC DISORDER! " | 
July 23rd, 2008, 10:48 PM
|  | Senior Member | | Join Date: Sep 2007 Location: BC, Canada
Posts: 1,576
Rep Power: 25 | | | Wishes, I am so sorry to hear this terrible news. It is such a blow for your whole family!
Thinking of you and your brother, and praying for you all, too.
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